Mom and child with CF

UNC CF Patient Family Advisory Board (PFAB)

The UNC CF clinic invites all parents of children with CF to participate in the Patient Family Advisory Board (PFAB). The PFAB is a group of staff and parents working together to improve to clinic experience and foster connection. The PFAB meets monthly to share ideas, build community, and work on projects to benefit children and families served in our center. The parents on the PFAB offer their experiences and ideas for improvement. They help educate clinic staff about ways to improve the patient and family experience.

Find Family-Centered Care at UNC

At UNC Children’s, you’ll find friendly, compassionate staff who are experts at working with children and families. We’ll do our best to ease your anxiety, help you understand your child’s medical condition so you can make informed choices about their care, and offer whatever additional support you need. You can help make your experience go as smoothly as possible by exploring our patients and visitors section to learn about:


UNC Cystic Fibrosis Family Newsletter

We are always looking for ways to keep you better informed. Take a look at the CF Family Newsletter, published quarterly. You can help make the newsletter even better but sharing any ideas for the next newsletter or submitting an article to include. If you have a contribution, please contact Kelly Moormann.

Spring 2022

Fall 2021

Spring 2022 CF Family Newsletter Fall 2021 CF Family Newsletter

Ask for a Referral

You’ll need a physician’s referral to see one of UNC Children’s pediatric pulmonary care specialists. If you’re not sure our services are right for your child, we invite you to contact a member of our care team at 919-966-1055.

One Family’s Story

With four of five children diagnosed with CF, the close-knit Tamborino family strives to make every moment count.